benefits of the bovine patch vs. synthetic patch, wondering what your chances will be of actually getting mad cowĭisease, and then secretly wondering if you will be prone to unexpected “mooing” and how that will affect your job situation. Across America, including one in the City of. Insensitive people (bosses, educational professionals, family members, coworkers, nurses, doctors).ġ3. Whereas, in September 2021, there will be walks held across the country for the annual Conquer Chiari Walk. An over-sensitive nervous system results in frequent “unpleasant tactile experiences.” For example, needing at least ten napkins (ideally wet ones) to deal with sticky fingers at meal time, the weird squishy feel of cotton the balls in medicine bottles give you shivers up your spine and any accidental contact of teeth with tin foil is enough to put you over the edge.ġ2. Learning brain decompression surgery for Chiari is not a cure, but you still need to have said surgery in order to prevent permanent nerve damage (without a guarantee surgery will help alleviate any of your current symptoms).ġ1. Dealing with mixed up brain signals that make you to turn right when you know you need to turn left. Learning how to communicate with doctors so you do not come off as “knowing” more than they do, or appearing to be a drug seeker or hypochondriac.ĩ. So if you’d like to learn more about Chiari malformation or support the Conquer Chiari cause, please visit Finding a neurosurgeon or any doctor who specializes in Chiari in or near your home state who is also in your insurance network.Ĩ. According to the Conquer Chiari website, one person out of 1,000 has a Chiari malformation. I hope that over time I, along with others in the community, can continue to work to raise awareness about Chiari malformation and to support the research being done to help those affected by it. My heart goes out to the victims and the families affected by this disease. I think the resolution was just the first step to show support for the victims and families who face challenges in their daily lives as a result of this debilitating disease. I did so after I was contacted by Valerie Ferguson, who lives in our community, asking for assistance to help support her and others with Chiari. Chiari malformation is a serious neurological disorder that affects more than 300,000 people in the U.S.ĭuring the 2011 legislative session, I authored a resolution recognizing September as Chiari Malformation Month in Indiana. This results in the compression of parts of the brain and spinal cord disrupting the normal flow of cerebrospinal fluid (a clear fluid which bathes the brain and spinal cord). I met many families who have been affected by Chiari malformation, and I was pleased that so many people from our community could make it out to show their support as well.įor those who aren’t familiar with Chiari malformation, it is a neurological condition that causes debilitating headaches, neck pain, weakness and numbness in the limbs, balance problems, visual disturbances and a host of other symptoms.Ĭhiari malformations are located at the base of the skull and occur when part of the brain, the cerebellum, descends out of the skull into the spinal area. Last weekend, I participated in the fifth annual Conquer Chiari Walk at Garvin Park. Conquer Chiari Walk helps support victims and families
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